Information for adult carers

This guide provides information on being an adult carer. The legal rights you have, and how to access further information and advice to support you in your caring role.

Occupational Therapy Carers Pathway

Caregivers ...  You matter.  Your health matters. Your life matters. 

image of a hanging oxygen mask found on airplanes.  Text reads carers put your oxygen mask on first.  You matter!

 

Recognising the impact on you 

Providing care and support for a family member, friend, or neighbour can be both rewarding and exhausting. While it is fulfilling to help others, caregiving can make it hard for you to enjoy other important parts of your life. Over time, this can affect your health and wellbeing.

Whether you are new to caregiving, have been doing it for years, or are facing changes in your role, it is important to seek support as early as possible. This will make your caregiving role more sustainable for both you and the person you are caring for.

Accessing Occupational Therapy for Self-Management 

The Occupational Therapy (OT) pathway is designed to support unpaid carers in managing their own health and wellbeing. This pathway begins with a personal conversation, recognising that each caregiver's situation is unique.

During your initial appointment with the occupational therapist, you may be asked questions like:

  • Who are you?
  • What matters to you?
  • How do you view your caregiving role?
  • What challenges are you facing in the activities that matter most to you?

Together, you and the occupational therapist will find ways to overcome these challenges, focusing on your strengths, interests, and values.

Depending on your needs, you may be offered:

  • A small group programme to develop your self-management skills
  • One-to-one occupational therapy sessions

Get in touch

To join the small group programme, you can self-refer by calling 0300 3690 680 and asking for the “OT group for caregivers.” An occupational therapist will contact you to ensure the programme meets your needs.

You can also talk to any health or social care professional involved in your care or speak with your GP for a referral.

Top tips for Carers 

  • Protect time for yourself - Make sure to include moments of rest in your daily routine.
  • Encourage independence - Help the person you care for do what they can by themselves, even if it takes longer. This fosters their independence and eases your load.
  • Share your experiences - Your insights are valuable. Professionals can learn from your unique knowledge about the person you care for.
  • Know your limits - When you feel tired, allow yourself to rest. It is okay to say “no,” “not now,” or “I can help within these limits.”
  • Ask for help - Remember, it is not a sign of weakness to accept support. It is a way of recognising that you need care too.

Early intervention matters

Early intervention and self-management are key to sustaining your health and wellbeing. By seeking support early, you can develop the skills needed to navigate your caregiving role with greater ease.

By following these steps and accessing available resources, you can maintain balance in your life while continuing to provide care.

Carer experiences 

Meet Annie and Kari-Ann who have both been engaged in the Occupational Therapy Carers Pathway. 

Hear their stories, and how carer support has benefitted them personally. 

Carer story: Annie

Video not displaying correctly?  View Annie's Story via YouTube

Carer story: Kari-Ann

Video not displaying correctly?  View Kari-Ann's Story via YouTube

Occupational Therapy Australian Podcast

Information for professionals 

Clinical Lead Occupational Therapist Ali Buchanan and Specialist Occupational Therapist Cat Brown are interviewed by Australian podcaster Rhiannon Crispe, founder of the OT Lifestyle Movement Podcast about introducing the Occupational Therapy Carers Pathway in East Lothian.  The podcast covers:

  • practical occupational therapy strategies to support carers,
  • what The OT Carer Pathway is and how you can use it in your practice. 
  • how occupational science informs The OT Carer Pathway 
  • the tier system within the OT Carer Pathway. 
  • Occupational therapy carer assessments. 
  • carer education and intervention. 

Listen to the podcast here